Dysphagia Care Ireland
Dysphagia Care Ireland
Privacy Policy

Privacy Policy

When you use DysphagiaCare.ie you trust us with your information. This privacy policy is meant to help you understand what data we collect, why we collect it, and what we do with it. We have tried to make it as simple as possible to understand but if you have any questions please contact us. You can contact us using the enquiry form on the website or by emailing contact@dysphagiacare.ie. 
DysphagiaCare.ie assumes the function of data controller and supervises the compliance with General Data Protection Regulation (GDPR) within the business.

  1. Information we collect
  2. Where we get our information
  3. How we use the information we collect
  4. Information we share
  5. How and when consent is obtained
  6. How we protect your data
  7. Protecting your rights to data
  8. Security of your personal data

1 Information we collect

DysphagiaCare.ie holds personal data as part of conducting a professional service. The data falls under the following headings: healthcare records, educational records, clinical records, general administrative records, financial records, and employee records.


1.1 Healthcare records

A healthcare record refers to all information collected, processed and held both in manual and electronic formats pertaining to the service user and their care. Speech and language problems can be complex, and a wide range of information may be collected in order to best meet the needs of the client, and to maintain a high quality service which meets best practice requirements. In order to provide a high quality service, a range of information may be collected.
Examples of data collected and held on all current and active clients include the following:

  • Contact details: Name, address, phone numbers, e-mail address,
  • Personal details: date of birth,
  • Other contacts: name and contact details of GP and any other relevant healthcare
 professionals involved.
  • For child services:
    • Parent/guardian details
    • Description of family
    • Educational placements
    • Pre- and post-natal history: This can include information relating to mother’s pregnancy
and child’s birth.
    • Developmental data: developmental milestones, feeding history, audiology history.
    • Medical details: such as any relevant illnesses, medications, and relevant family history.
Reports from other relevant allied health professionals such as: Audiology, Psychology,
CAMHS (Child & Adolescent Mental Health Services), Occupational therapy, Physiotherapy,
Ophthalmology, ENT, etc.
  • 
For adult services:
    • Employment/vocational history
    • Family and social history
    • Mental health
    • Medical details: such as any relevant illnesses, medications, and relevant family
history. Reports from other relevant allied health professionals such as: Audiology,
Psychology, Occupational therapy, Physiotherapy, Ophthalmology, Neurology, ENT,
etc.
  • Other information may also be collected if it is relevant to a specific case.

1.2 Educational records

Relevant Individual Educational Plans (IEPs), progress notes from educational staff and school reports may be held, as well as case notes relating to discussions with educational staff.

1.3 Clinical records

Specific data in relation to communication skills or swallowing abilities may be collected and held, such as assessment forms, reports, case notes, e-mails, text messages and transcripts of phone.
Audio and video files may also be collected and stored.

1.4 General administrative records

DysphagiaCare.ie may hold information regarding attendance reports and accident report forms.


1.5 Financial records

A financial record pertains to all financial information concerning the practice, e.g. invoices, receipts, information for Revenue. DysphagiaCare.ie may hold data in relation to: attendance and purchasing history, card payments, bank details, receipts and invoices. Information will include name of bill payer, client name, address and record of invoices and payments made. DysphagiaCare.ie may also hold supplier information, including the name, address and bank details of supplier.

1.6 Employee records

As an employer, DysphagiaCare.ie holds employee records for each individual employee. These include CV, name, address, PPS No., date of birth, start and finish date of employment, garda and overseas criminal bureau vetting records, copies of identification, copies of qualification and training certificates, copies of car insurance details, revenue and employee registration documentation, and management and performance notes.

2 Where we get our information

Personal data will be provided by the client, or in the case of a child (under 16 years), their 
parent(s)/guardian(s). This information will be collected as part of a case history form prior to, or on the date of first contact.

Information may also be provided directly from relevant third parties such as schools, medical professionals and allied health professionals, with prior consent from the client or
parent(s)/guardian(s).

Personal data will be provided by the employee on commencing employment, and periodically during the period of employment as required to update records


3 How we use the information that we collect

We use the information we collect to provide assessment and therapy as per the relevant professional guidelines, as well as to maintain the general running of the business, such as running our electronic booking system, keeping our accounts, managing employee records, and updating you of any changes in policies or fees.
Information may also be used for research purposes, with the written consent of the client or parent/guardian.


3.1 Data retention periods

The retention periods are the suggested time periods for which the records should be held based on the organisation’s needs, legal and/or fiscal precedence or historical purposes. Following the retention deadline, all data will be destroyed under confidential means.

3.2 Client records

3.2.1 Healthcare, Educational and Clinical records, and general administrative records


DysphagiaCare.ie keeps both physical and electronic records of clinical data in order to provide a service.

  • The preferred format for clinical data is paper.
  • Clinical data is deleted or confidentially destroyed after 2 years from last invoiced session.
  • Clinical data used for research purposes (with the client’s permission) may be kept for longer than 2 years.
  • Video or voice recordings relating to client care or videoconferencing records may be recorded with consent, analysed and then destroyed. If written consent is provided to use recordings for training purposes, the client will have the option to withdraw consent at any time.

3.2.2 Financial records

DysphagiaCare.ie keeps electronic and paper records of financial data from those who use our services.

Section 886 of the Direct Tax Acts states that the Revenue Commissioners require records to be retained for a minimum period of six years after the completion of the transactions, acts or operations to which they relate. These requirements apply to manual and electronic records equally. Therefore;

  • 
Financial Data is kept for 6 years to adhere to Revenue guidelines.
  • Financial Data (including non-payment of bills) can be given to Revenue at Revenue’s request.

3.2.3 Employee records

DysphagiaCare.ie keeps electronic and paper records of employee data for a period of 6
years after termination of employment by either party. This is to allow for accurate
references to be given if requested for further employment or education opportunities, and
to contribute to accurate Financial Data if required.

3.2.4 Contact Data

Contact Data is kept for 6 years to allow processing of Financial Data if required. (This may be retained for longer for safety, legal request, or child protection reasons.)
3.3 Exceptions
If under investigation or if litigation is likely, files must be held in original form indefinitely, otherwise files are held for the minimum periods set out above.

4 Information we share

We do not share personal information with companies, organisations and individuals outside DysphagiaCare.ie unless one of the following circumstances apply:

  • 
4.1 With your consent:
We will share personal information with other relevant health care providers or educational
providers when we have your written consent to do so. We require opt-in consent for the sharing of any sensitive information.
  • 4.2 For legal reasons:
We will share personal information with companies or organisations outside DysphagiaCare.ie if disclosure of the information is reasonably necessary to:
    • Meet any applicable law, regulation, legal process or enforceable governmental request.
    • Meet the requirements of the Children First Act 2015.
    • Protect against harm to the rights, property or safety of DysphagiaCare.ie, our service users or the public as required or permitted by law.
  • 4.3 For processing by third parties/external processing
The following third parties are engaged for processing data:
Who Type of data Purpose
Administrative staff Record keeping, typing,
correspondence.
Updating records
Accountant Financial Processing financial accounts


5 Sharing Data


5.1 Legal requirements

DysphagiaCare.ie is required to share data with external parties in the following circumstances:

  • Compliance with local tax and audit laws.
  • Compliance with child protection.
  • Compliance with law enforcement.


5.2 Financial requirements

DysphagiaCare.ie is also required to share financial data with our accountants at FDC Group in order to comply with local tax laws.
5.3 Other parties
Any transfers outside the above which contain Personal Identifying Information (PII) to third parties such as hospitals, GPs, nursing homes, are only made once the owner of the data has given express written permission by letter or email to do so.


5.4 Transfer of personal data outside the EEA

In certain instances, personal data may be transferred outside the EEA, e.g. to the US or other countries. This would be for specific purposes such as web-based appointment scheduling, or where a previous employee takes up employment outside the EEA. In such instances, DysphagiaCare.ie will use third parties which meet the privacy standards of GDPR.


6 How and when we obtain consent

Prior to initial assessment or consultation, clients will be advised that this data protection policy is available to view on our website, www.dysphagiacare.ie. Prior to initial assessment or consultation, a consent form will need to be signed by the client (or in the case of a child (under 16 years), their parent(s)/guardian(s)) stating that they are aware of this data protection policy.

If using an online booking system, a consent form will be attached onto any initial bookings via the online booking system. Users will be directed to read the data protection policy and to tick to agree to the terms. Services cannot be initiated without ticked consent to our data protection policy.

In cases where services from DysphagiaCare.ie are obtained and provided to an individual on behalf of a hospital, nursing home, residential care centre, school, pre-school, education centre, training centre, or charity, a consent form will need to be signed by a person in authority at that service confirming that they have engaged our services as a supplier on behalf of their client and are aware of and agree to our data protection policy, and have provided their own privacy policy to the individual which includes consent that external suppliers may hold personal data.

Should a client wish to withdraw their consent for data to be processed, they can do so by contacting DysphagiaCare.ie.


7 How we protect your data

In accordance with the General Data Protection Regulation (GDPR), we will endeavour to protect your personal data in a number of ways:

  • 
7.1 By limiting the data that we collect in the first instance
    All data collected by us will be collected solely for the purposes set out at 1 above and will be collected for specified, explicit and legitimate purposes. The data will not be processed any further in a manner that is incompatible with those purposes save in the special circumstances referred to in section 5.1.
Furthermore, all data collected by us will be adequate, relevant and limited to what is necessary in relation to the purposes for which it is collected which include, inter alia, the assessment, diagnosis and treatment of speech, language and communication disorders.
  • 
7.2 By transmitting the data in certain specified circumstances only
    Data will only be shared and transmitted, be it on paper or electronically, only as is required, and as set out in section 3.
7.3 By keeping only the data that is required, when it is required and by limiting its accessibility to any other third parties.
  • 
7.4 By disposing of/destroying the data once the individual has ceased
receiving treatment within 2 years of the completion of this treatment apart from the special categories of personal data as set out at 1.1 above. Where data is required to be held by us for longer than the period of 2 years we will put in place appropriate technical and organisational measures to ensure a level of security appropriate to the risk. These may include measures such as the encryption of electronic devices, use of pseudonyms for personal data, and/or safe and secure storage facilities for paper/electronic records.
  • 7.5 By retaining the data for only as long as is required 
which in this case is 2 years except for circumstances in which retention of data is required in circumstances set out at part 1.1 above or in certain specific circumstances as set out at Article 23(1) of the GDPR.
  • 
7.6 By destroying the data securely and confidentially after the period of retention has elapsed.
    This could include the use of confidential shredding facilities or, if requested by the individual, the return of personal records to the individual.
  • 7.7 By ensuring that any personal data collected and retained is both accurate
and up-to-date


8 Protecting your Rights to Data

  • 8.1 Adult clients
    Adults have the right to request data held on them as per article 15 of GDPR. A request must be made in writing. Further information regarding accessing your personal data are available in the document ‘Rights of Individuals under the General Data Protection Regulation’, downloadable from: www.gdprandyou.ie
  • 
8.2 Children
    For children under the age of 16, data access requests are made by their guardians. When a child turns 16, they may then make a request for their personal data. However, this is subject to adherence with the Children First Act.
  • 
9 Security

    DysphagiaCare.ie is aware of the need for privacy. As such, we aim to practice privacy by design as a default approach, and only obtain and retain the information needed to provide you with the best possible service.
All persons working in, and with DysphagiaCare.ie in a professional capacity are briefed on the proper management, storage and safekeeping of data.
All data used by DysphagiaCare.ie, including personal data may be retained in any of the following formats:

    • Electronic Data
    • Physical Files
      The type of format for storing the data is decided based on the format the data exists in.
Where applicable, DysphagiaCare.ie may convert physical files to electronic records to allow us to provide a better service to clients.

      9.1 Data Security

      DysphagiaCare.ie understands that the personal data used in order to provide a service belongs to the individuals involved. The following outlines the steps which DysphagiaCare.ie use to ensure that the data is kept safe.

      9.1.1 Electronic Data

      All electronic data is contained in the following systems:

      Email:

      • This system is physically located in Ireland.
      • This system provider is aware of their requirements for GDPR compliance.
      • The system has an administrator who is external to DysphagiaCare.ie, however this
administrator does not have access to client records
      • This system has a Live Update for security enabled.
      • All persons working in DysphagiaCare.ie have READ/WRITE/ DELETE access to records.

      • All persons require a Log on and Password in order to access the records.
      • A copy of the files are not made on the users’ computer when in use.
      • The data controller in DysphagiaCare.ie can remove or delete users.
      • The data controller in DysphagiaCare.ie can change users passwords.

      Shared folders (Google Drive and Dropbox):

      • The system has an administrator / Database owner who is external to DysphagiaCare.ie,
 however this administrator does not have access to client records.
      • This system has a Live Update for security enabled.
      • All persons working in DysphagiaCare.ie have READ/WRITE/ DELETE access to records.
      • All persons require a Log on and Password in order to access the records.
      • A copy of the files are not made on the users’ computer when in use.
      • The data controller in DysphagiaCare.ie can remove or delete users.
      • The data controller in DysphagiaCare.ie can change users passwords.

      Laptop computers:

      • This system is physically located in Ireland.
      • The system has an administrator who is internal to DysphagiaCare.ie
      • This system has a Live Update for security enabled.
      • All persons working in DysphagiaCare.ie have READ/WRITE/ DELETE access to records.
      • All persons require a Password in order to access the records.
      • A copy of the files are not made on the users’ computer when in use.
      • The data controller in DysphagiaCare.ie can remove or delete users.
      • The data controller in DysphagiaCare.ie can change users passwords.

      9.1.2 Physical Files

      • Physical data is located in the following physical premises:
Ballymague
 Buttevant
 Co. Cork
      • Only persons working in DysphagiaCare.ie have access to these records.
      • These records are kept in a container secured with a lock and key.
      • 
If necessary a physical file may be transported from one premises to another, or to an alternative site where Speech and Language Therapy services may be provided from. This happens where records are needed in another location for the purpose of provision of speech and language therapy. Every care is taken during these times to ensure the security and confidentiality of personal data until the physical file can be returned to one of the addresses above.

      9.2 Security Policy

      • 9.2.1 DysphagiaCare.ie understands that requirements for electronic and physical storage may change with time and the state of the art. As such, the data controller in DysphagiaCare.ie reviews the electronic and physical storage options available to DysphagiaCare.ie annually.
      • 9.2.2 All physical devices used by persons working in DysphagiaCare.ie which may contain any identifiable personal information are password protected. They are not enabled with loss theft tracking and remote wipe abilities.
      • 
9.2.3 All persons working in DysphagiaCare.ie are aware of and briefed on the requirements for good data hygiene. This is refreshed annually. This briefing compliance is monitored by DysphagiaCare.ie data controller and includes, but is not limited to:
        • Awareness of client conversations in unsecure locations.
        • Enabling auto-lock on devices when leaving them unattended, even within DysphagiaCare.ie locations.
        • Use of non-identifiable note taking options. (initials, not names).
        • The awareness of DysphagiaCare.ie procedure should a possible data breach occur,
either through malicious (theft) or accident (loss) of devices or physical files.

      Date of document: Feb 2021